WE BELIEVE EVERY PERSON SHOULD HAVE ACCESS TO EARLY DIAGNOSIS & EFFECTIVE TREATMENTS FOR ENDOMETRIOSIS.

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Endo What is a groundbreaking, bi-partisan movement dedicated to educating and empowering people with endometriosis and informing health care providers and policymakers while holding decision makers accountable. 

We envision a world where endometriosis is no longer a mystery.

A world where every girl and woman knows the symptoms of the disease – and is empowered to seek treatment. A world where health providers are able to quickly diagnose and effectively treat the disease. And a world where researchers and policymakers are motivated by patient need, rather than profit, to advance education and research to diagnose and treat endometriosis. 

We have no industry ties and do not accept funds from pharmaceutical companies.

The Team

Shannon Cohn

Co-Founder

Shannon Cohn

Co-Founder

Shannon is a filmmaker, attorney and activist. She has produced award-winning films for over a decade, most recently Endo What, a feature documentary named "the first step in a plan for change" by Newsweek. Before becoming a filmmaker, Shannon practiced international law and was part of the legal team that prosecuted Enron. She has endometriosis and has two young daughters with a 7x increased risk of having the disease.

Mary Alice Hatch

Co-Founder

Mary Alice Hatch

Co-Founder

Mary Alice is an endometriosis and women's health advocate. Through her work with the Marriott Daughters Foundation, she is dedicated to elevating communities through educational, human services and health initiatives. She founded the Boston Center for Endometriosis, a center focused on multi-disciplinary care for endometriosis that pulls together internationally-recognized leaders from Boston Children's Hospital, Brigham and Women's Hospital and Harvard Medical School.

Casey Berna

Director of Programs & Partnerships

Casey Berna

Director of Programs & Partnerships

Casey, a social worker, advocate, and activist, has spent decades working in the non-profit sector. She is also an endometriosis patient who has struggled with infertility and recurrent pregnancy loss. Casey's desire to spare fellow patients from delayed diagnosis and inadequate treatment drives her work to empower patients, create innovative initiatives, and build partnerships to ensure that her daughter's generation will have access to quality care.

Advisory Council:

Heather Guidone

Heather Guidone

Heather is internationally known for her tireless work on behalf of the global endometriosis community for more than two decades. She is the Program Director of the Center for Endometriosis Care, focused on 'bench to beltway to bedside' efforts encompassing disease education, clinical research, policy reform, patient-centered caregiving, health literacy, patient engagement and much more. A Medical Writer and Board Certified Patient Advocate, she has contributed to countless books, articles and publications on the disease and remains an active and engaged member of many women's health organizations.

Jhumka Gupta, PhD

Jhumka Gupta, PhD

Jhumka Gupta, ScD, is Assistant Professor in the Department of Global and Community Health at George Mason University. Her research program applies a social epidemiology framework towards advancing the science of gender-based violence against women and girls (e.g. intimate partner violence, sex trafficking). Her primary focus is with vulnerable populations, both within and outside of the United States, and includes refugees, immigrants, and communities impacted by conflict. She has authored or co-authored over 50 peer-reviewed publications on these topics. Previously, Dr. Gupta was an Assistant Professor at the Yale School of Public Health.

Iris Orbuch, MD

Iris Orbuch, MD

Iris is the Director of the Advanced Gynecologic Laparoscopy Center in Los Angeles and New York City. Dr. Iris Orbuchs’ practice is limited to Laparoscopic and Robotic Gynecologic Surgery, and is primarily a referral practice for endometriosis. Her training, under the guidance of Dr. C.Y. Liu and Dr. Harry Reich — both pioneers in the field of advanced laparoscopic surgery — allows Dr. Orbuch to be one of a handful of physicians across the country trained to perform advanced minimally invasive procedures specializing in endometriosis. She is currently the Vice Chair of the Endometriosis Special Interest Group of AAGL, the premiere International Gynecologic Laparoscopy organization. Dr. Orbuch is board certified in OB/GYN.

 

Nancy Petersen, RN

Nancy Petersen, RN

Nancy is one of the world's most recognized endometriosis advocates. An award-winning healthcare professional, she has spent more than five decades engaged in vast efforts to improve care for those with the disease. Having also struggled with endometriosis personally, Nancy has achieved countless milestones in the treatment of the disease, including her tireless dedication to improve the quality of life for countless individuals by empowering and connecting them to better care through “Nancy’s Nook,” her interactive endometriosis educational forum that has gained international acclaim among its tens of thousands of physician and patient members.

Michael Rogers, PhD

Michael Rogers, PhD

Dr. Rogers is an Assistant Professor of Surgery at Harvard Medical School. He received his Ph.D. from the Mayo Graduate School. His early work at Boston Children’s Hospital led to the discovery of two new drugs for multiple myeloma. He currently works to bring the same spirit of successful innovation to endometriosis research. A major focus of Dr. Rogers’ laboratory is the identification of new molecular targets for disease therapy. Molecules that inhibit these targets will then be developed into drugs to improve the lives of women with endometriosis.

Millen Magese

Millen Magese

Millen Magese is a Tanzanian supermodel and humanitarian. Beyond her work in fashion, Millen's mission is to further causes that benefit women, children, and primary education in Africa and ensuring that women and girls have access to education about endometriosis and reproductive health.

Our Partners

 If you would like to join the Coalition, please contact us at info@endowhat.org